APRIL 2024  autism awareness month   

 

April is Autism Awareness Month. In March of 2023 the CDC released the latest data from the Autism & Developmental Disability Monitoring (ADDM) Network showing 1 in 36 eight-year-old children identified with ASD in 2020. This is an increase from the previous ASD prevalence data of 1 in every 44. Autism is known as a “spectrum” disorder because there is wide variation in the type and severity of symptoms people experience. Although ASD is a lifelong disorder, early detection, treatments and services can improve a person’s symptoms and daily functioning.

 

New Data on Autism | CDC

NIMH » Autism Spectrum Disorder (nih.gov)

 

Autism Spectrum Disorder (ASD) is a neurological and developmental disorder that affects how people interact with others, communicate, learn, and behave. People of all genders, races, ethnicities, and economic backgrounds can be diagnosed with ASD.  As these numbers increase it is critical to remember there are distinctions between daycare, not required by law, and early intervention and IEP services required by civil rights, education and disability laws. We must ask... what happens as these demands increase on a system already lacking qualified expertise to meet many current obligations?

 

Data & Statistics on Autism Spectrum Disorder | CDC

Autism centers are closing their doors in Colorado (coloradosun.com)

Families push state to increase funding to autism service providers (denver7.com)

 

 


Coffee with a Cause  april 2024     

 

Many mountain communities see UPK as a childcare solution helping parents rejoin the workforce. But, this also increases stress on early childhood screening and intervention services. Rural and resort communities often lack qualified expertise due to affordable housing shortages and high cost-of-living. While well-intentioned UPK creates an early detection and intervention crisis in many communities who already lack qualified expertise and critical support professionals to meet existing needs. Now imagine what happens when 600+ families on waitlists for childcare descend on UPK.

 

Ready or not, universal preschool is coming to Colorado (cpr.org)

Over 600 children on Summit County’s waitlist for child care | SummitDaily.com

 

Most screenings are done by community centered boards using school district staff. This is like health insurance companies who pay for your treatment diagnosing your condition instead of a doctor you selected. This can result in diagnosis based on available funding and expertise not the needs of patients or students with IEPs. It's dangerous to rely on a one-size-fits-all system for diagnostics, treatment plans and providing services required by law. This is where private practice professionals and second opinions increase accurate diagnosis, improve outcomes and provide added protections and accountability.

 


Coffee with a Cause  april 2024  

 

Early intervention improves outcomes for individuals and reduces costs to caregivers and taxpayers. On average, autism costs $60,000 a year through childhood, with the bulk of the costs in special services and lost wages related to demands on one or both parents. Medical expenditures for children and adolescents with ASD were 4.1 to 6.2 times greater than for those without autism. But, the majority of autism’s costs in the U.S. are for life-long adult services. This continues fueling growing urban-rurl gaps and adversely impacts independent living opportunities in many mountain communities.

 

Nearly half of 25-year-olds with autism have never held a paying job. 80% of those who obtain a job through DVR programs worked part-time at a median weekly rate of $160, putting them well below the poverty level. This is exacerbated by corporate employers in many resort communities focused on maximizing revenues through seasonal jobs and cutting labor costs not creating year-round employment. In urban settings meaningful employment with large corporations comes with a paycheck they can count on and health insurance benefits not always accessible to those with disabilities or other diagnosis especially in rural and resort communities. A common sense balanced approach deploys merit-based employment and small business solutions for the neurodivergent and the caregivers to complement trickle down charities and government systems.

  

Autism | U.S. Department of Labor (dol.gov)

Autism Statistics and Facts | Autism Speaks

The Silent Crisis of Autism Services in Colorado (behaviorspan.com)

 

Remember a balanced approach uses verified data to identify problems and to propose actionable solutions. Only those willing to have difficult conversations can solve difficult problems. The first step to solving any problem is accepting the data indicating a problem... not blaming the messenger or method of delivery.

 

So join us for Coffee with a Cause and let's keep the conversation going each month with more data and actionable real life solutions!